Hellloooo! So.. God is awesome -- shocker. lol lately, when I get sad or anxious, or whatever, I ask God to remind me who I am. I have accepted the salvation offered to me through Jesus Christ's blood and I am now a child of God. I am protected in the shadow of His wings, and I can trust His plans for my life. It sounds wonderful, and on a day when I'm really feeling pumped for Christ, it's like YEAHHH BABBYY!!! But in those moments when I'm on the edge of despair - it feels like I'm too weak to fight back. That's a lie from the devil - and I know it is -- which is why I ask for God to remind me who I am .. I am not a little weakling -- because my Daddy is STRONG and I am his! Have you ever noticed how character traits are passed down to children? If a father is a die hard mechanic -- his kids usually know a lot about cars.. or ever see a reallyyyy tall guy? his kids are usually not shorties.. anyway -- the point I'm making is that God created us in HIS image -- and He certainly isn't one to give way to satan -- He doesn't cower under satan's attacks or temptations or lies. He stands strong - which is what He's called us to do -- the Bible says to put on the full armor of God! How awesome! And although no weapon formed against the followers of Jesus will prosper (Isaiah 54:17), God still equips us with weapons! The full armor of humanly warfare? NOPE! The armor of GOD! (Ephesians 6:10-18) . It really is amazing that we have access to that. But... satan didn't just start his carreer in deceiving yesterday.. so he's pretty well versed at what he does -- and back to those moments when I'm overwhelmed -- he makes me feel like there is no possible way I am strong enough to suit up. Picture a knight and all the armor they wear.. and then picture little ol' me, trying to even stand up wearing all that! No way. And that's the image I get in my head - just what the devil wants, and opposite of what God wants/the truth. See, the truth is, God's armor IS NOT too heavy for me to carry - in fact if it were a physical outfit -- it'd be manufactured out of those "easy to breathe" fabrics. But there's more, because of God doesn't give minimally, but abundantly -- so despite the truth that His armor is NOT to heavy for me, He knows that I'm being deceived and believing that it is -- so He offers to help me suit up, to help me stand up, and to lift the "heavy weight". How nice! But here's where he really struck me yesterday....
I am totally prideful and selfish -- I would definitely say those are the two sins that I unfortunately lose to the most often. (God's helping me though!) Anyway, I tend to make everythingggg about me somehow - without even realizing! Including asking God for strength in times of need. I tend to try to do things out of my own strength instead of God's. "Lord, remind me who I am" -- yes, it is good to be reminded of who you are IN CHRIST, but last night God reminded me of something else too..
"Lord, remind me who I am" is not nearlyyyyy as powerful as "Lord, remind me who YOU are." Praise God that He is the one who walked on water, and calmed the seas. That He is maker of the universe, that He breathed the stars into existance, and that He is the creator of alllll the things we know, and sooo much more we haven't even discovered. And most of all.. that He is who He knows himself to be -- not just who we think he is .. In other words, we are limited in our comprehension, so therefore we limit God. We often put Him inside a box, or doubt, but even if we don't do that -- our brains can only understand so much .. and God defies the limits of our brains. LOVE IT!
So.. when you're having a bad day, tired, sick, feel like crying, or just feel weak or overwhelmed -- ask God to help you remember who you are in Him - worth His life - but more so, ask God to help you remember who He is for you.
P.S. if you guys get a chance, youtube "I AM" by Mark Schultz -- that's the song God used to remind me of just a few things about Himself.
God graciously reminds me who He is because God is love.
Saturday, July 21, 2012
Thursday, July 12, 2012
they tried to make me go to rehab and i said.. yes, yes, yes!
Hello again! As most of you probably know, today I had a transplant visit. Everytime I go it's a little different, but essentially I do some kind of test, and then meet and talk with my transplant pulmologist. Today followed that outline, too. Here's my day.
Wake up. Too early. lol let me tell you, my poor mother has really got the gift of cheerfulness when I'm walking around like an attitudey zombie, and my dad is frantic to leave on time .. which we didnt.. shocker. lol but we made it there on time and my first test was the cardiopulmonary stress test aka ride a bike with stuff connected to you. They put a head thing on me -- has anyone seen mean girls? if so, you know that part when regina is getting ready for prom and decorating her head brace? it was JUST like that except it didnt connect to my neck, and i wasn't getting ready for prom, and i try to be a nice girl :P -- anyway they put that on me, and then connect a mouth piece to that and obviously that goes in my mouth lol and then they put the little heart monitors on me, and a pulseox (detects my oxygen levels), and the lady took my blood pressure every two minutes. I was really blown away by how much they can detect, and monitor, and adjust! SO cool! So I had to sit at rest for 5 minutes to get my baseline, and then I did a 3 minute warm up and then they slowly increase the pressure. I don't actually know how long I was on the bike for but the lady said I did really well! The assessment is what really excited me, though. I'm hoping I understood everything correctly but here goes..
She said that I have a lot of lactic acid. That basically there's two types of like muscle energy in your muscles - type 1 is long lasting; where you can exert energy forever basically - this is the kind that burns your calories. type 2 is for short bursts of energy, like standing up or sprinting. Type 2 gets tired VERY quickly. So when you don't exercise for a long time because you're sick or whatever, your type 1s diminish and theres more type 2s. So your muscles get tired really quickly as a result. And as a result of that, you produce lactic acid. They way your body gets rid of lactic acid is by binding it with carbon dioxide and exhaling it. Hence .. the more lactic acid you have, the breathier you are. Soooo she said I have a lot of lactic acid -- which means that I could try to exercise and might become less breathy! I'm SO souped!
Next was my 6 minute walk test -- I do as many laps around these two cones as I can in 6 minutes. Last time I did it, I was on oxygen and my levels still dipped to 85. Today I did it without oxygen, and only dipped to 87! I did have to take a ten second break this time, but I still did really well!
The concesus was to start exercising slowly. They don't want me to jump in to something my body can't handle. And to use a little bit of oxygen while exercising so that if my levels drop, it won't hurt my body, and I'll be able to exercise a little longer than without oxygen. So I am happy!! lol
My weight is back up to 100.4! woo hoo! And my transplant doc was happy that I had gotten all my vaccines and stuff done. My wisdom teeth are scheduled to be pulled and.... I DON'T HAVE TO GET A CARDIO CATH!!!!
For those of you who don't remember, or haven't heard -- there was that huggee uproar about the blood clot on my port, which God turned into a "vegetation". The cardio cath is when they put a catheter into your right heart and check around, but that's right where my "vegetation" is and there were majorrrrr concerns/risks of dislodging it with the cath, so they held it off. The newest opinion from the cardiologist and the cath techs was that it would probably not dislodge and the test could more than likely be done without anything happening. I was happy about this because I don't want a dangerous thing in my heart, but at the same time, I REALLY didn't want that test -- it just really freaked (and still freaks) me out for some reason. So today my doc says well of course there are risks with every procedure, but there is thought to be very little risk of dislodgement with this procedure. And I'm thinking oh great... she's going to say so let's schedule the cath. Then the next thing I know, she says, but if it's a concern to you, we don't have to do it. It's not a test that is absolutely vital for transplant, it's good to have, but if it's going to be a big concern, let's skip it for now and if it ever comes up as an issue we'll discuss it then.
THANK YOU GOD!!! I was not expecting that turn in the conversation and my mom, dad, and i all breathed a sigh of relief!
After that, we just talked about things like if I could wear nail polish and some less important things like antibiotics :P (by the way, I was very happy to hear I CAN wear nail polish !) We finished off well and then were on our way home!
It's hard because after today, I feel like I don't want to be on the transplant list -- which by the way I'm not yet. I can be put on if things get worse, and in case of emergency, I can be added onto it within an hour. But for now, I'm not getting worse, THANK YOU JESUS!, and I really feel like if I exercise and stuff, I could really postpone my need for transplant for awhile. I am super excited to exercise (even though when I know I won't love it so much when I'm struggling to do it.. but still) andddd I'm going to start going to rehab -- pulmonary rehab that is :P -- and I'm really excited about that too!
Thanks for all the prayers and encouragement -- definitelyyy helped make my day so great today!
I had a REALLY great day because God is love.
Wake up. Too early. lol let me tell you, my poor mother has really got the gift of cheerfulness when I'm walking around like an attitudey zombie, and my dad is frantic to leave on time .. which we didnt.. shocker. lol but we made it there on time and my first test was the cardiopulmonary stress test aka ride a bike with stuff connected to you. They put a head thing on me -- has anyone seen mean girls? if so, you know that part when regina is getting ready for prom and decorating her head brace? it was JUST like that except it didnt connect to my neck, and i wasn't getting ready for prom, and i try to be a nice girl :P -- anyway they put that on me, and then connect a mouth piece to that and obviously that goes in my mouth lol and then they put the little heart monitors on me, and a pulseox (detects my oxygen levels), and the lady took my blood pressure every two minutes. I was really blown away by how much they can detect, and monitor, and adjust! SO cool! So I had to sit at rest for 5 minutes to get my baseline, and then I did a 3 minute warm up and then they slowly increase the pressure. I don't actually know how long I was on the bike for but the lady said I did really well! The assessment is what really excited me, though. I'm hoping I understood everything correctly but here goes..
She said that I have a lot of lactic acid. That basically there's two types of like muscle energy in your muscles - type 1 is long lasting; where you can exert energy forever basically - this is the kind that burns your calories. type 2 is for short bursts of energy, like standing up or sprinting. Type 2 gets tired VERY quickly. So when you don't exercise for a long time because you're sick or whatever, your type 1s diminish and theres more type 2s. So your muscles get tired really quickly as a result. And as a result of that, you produce lactic acid. They way your body gets rid of lactic acid is by binding it with carbon dioxide and exhaling it. Hence .. the more lactic acid you have, the breathier you are. Soooo she said I have a lot of lactic acid -- which means that I could try to exercise and might become less breathy! I'm SO souped!
Next was my 6 minute walk test -- I do as many laps around these two cones as I can in 6 minutes. Last time I did it, I was on oxygen and my levels still dipped to 85. Today I did it without oxygen, and only dipped to 87! I did have to take a ten second break this time, but I still did really well!
The concesus was to start exercising slowly. They don't want me to jump in to something my body can't handle. And to use a little bit of oxygen while exercising so that if my levels drop, it won't hurt my body, and I'll be able to exercise a little longer than without oxygen. So I am happy!! lol
My weight is back up to 100.4! woo hoo! And my transplant doc was happy that I had gotten all my vaccines and stuff done. My wisdom teeth are scheduled to be pulled and.... I DON'T HAVE TO GET A CARDIO CATH!!!!
For those of you who don't remember, or haven't heard -- there was that huggee uproar about the blood clot on my port, which God turned into a "vegetation". The cardio cath is when they put a catheter into your right heart and check around, but that's right where my "vegetation" is and there were majorrrrr concerns/risks of dislodging it with the cath, so they held it off. The newest opinion from the cardiologist and the cath techs was that it would probably not dislodge and the test could more than likely be done without anything happening. I was happy about this because I don't want a dangerous thing in my heart, but at the same time, I REALLY didn't want that test -- it just really freaked (and still freaks) me out for some reason. So today my doc says well of course there are risks with every procedure, but there is thought to be very little risk of dislodgement with this procedure. And I'm thinking oh great... she's going to say so let's schedule the cath. Then the next thing I know, she says, but if it's a concern to you, we don't have to do it. It's not a test that is absolutely vital for transplant, it's good to have, but if it's going to be a big concern, let's skip it for now and if it ever comes up as an issue we'll discuss it then.
THANK YOU GOD!!! I was not expecting that turn in the conversation and my mom, dad, and i all breathed a sigh of relief!
After that, we just talked about things like if I could wear nail polish and some less important things like antibiotics :P (by the way, I was very happy to hear I CAN wear nail polish !) We finished off well and then were on our way home!
It's hard because after today, I feel like I don't want to be on the transplant list -- which by the way I'm not yet. I can be put on if things get worse, and in case of emergency, I can be added onto it within an hour. But for now, I'm not getting worse, THANK YOU JESUS!, and I really feel like if I exercise and stuff, I could really postpone my need for transplant for awhile. I am super excited to exercise (even though when I know I won't love it so much when I'm struggling to do it.. but still) andddd I'm going to start going to rehab -- pulmonary rehab that is :P -- and I'm really excited about that too!
Thanks for all the prayers and encouragement -- definitelyyy helped make my day so great today!
I had a REALLY great day because God is love.
Tuesday, July 10, 2012
a stroll down memory lane
Hello all! Just a heads up -- this post is really more for me than it is for you lol I'm hoping God can still use it for you, of course! But I was chatting with a friend, and telling them stories about how awesome God has been.. and so i just wanted to type some to remind myself how sweet Jesus is to me. I know some are more vague than others .. but they hold significance to me no matter how short the sentence lol -- if you want to hear details .. feel free to message me cause that's what I'm called to do -- share the goodness of God! (I just didnt wan't to force my details on ya! After all.. I can talk quiteeee a bit! haha) Anyway.. God is the nicest :]
Dear God,
Remember when...
... you heard my heart's cry for independence and answered by placing a CF specialty hospital right down the road from the hotel I was going to stay at during a road trip with a friend? That was the only reason I was allowed to go, and you planned for it before I even started planning the trip.. probably before I was even old enough to talk.
... you turned my life-threatening, port disabling, big surprise upset, blood clot into a non-threatening vegetation?
... you put your hand on mine, and held in my fragile, flimsy IV long enough until they deemed it ok to come out?
... and you not only held it in, but eased the pain during infusion. I cried out to you, and you heard me.
... you brought me safely to Ohio, and amazed all the doctors, nurses, and myself with the surgery, and how quickly you recovered me?
... you gave wisdom to the one nurse on my team to start me on flu medication even when all the other doctors said that it wasn't the flu?
... it was the flu and you had already smoothed my pathway to recovery by starting me early on the meds?
... you filled my lungs and let me sing praises to your sweet name like never before? That was so awesome!
... I was scared to be knocked out, and called your name right before the drugs hit me and just as you promised in the Psalms, held my high?
... you surrounded me with nurses who were believers?
... you gave me praise music to recover to?
... I was upset and stubborn, not wanting to get my port, and scared of it. And you reminded me who I am? you made me remember that "you make me wanna be brave"?
... when I sinned against you and you forgave me?
... you sat with me in my bad mood?
... you let me cry to you?
... I didn't want to talk, so you sat with me quietly?
... you reminded me that you're going to make me run without growing wearing, and walk without fainting.. literally. (Isaiah 40:31)
... I was having a terribleeee day at work, and you played my favorite song on the CD player?
... you died for me even when I didn't love you?
Thank You, Saviour!
I have a God who cares about every little (and big!) detail and takes care of them because God is love <3
Dear God,
Remember when...
... you heard my heart's cry for independence and answered by placing a CF specialty hospital right down the road from the hotel I was going to stay at during a road trip with a friend? That was the only reason I was allowed to go, and you planned for it before I even started planning the trip.. probably before I was even old enough to talk.
... you turned my life-threatening, port disabling, big surprise upset, blood clot into a non-threatening vegetation?
... you put your hand on mine, and held in my fragile, flimsy IV long enough until they deemed it ok to come out?
... and you not only held it in, but eased the pain during infusion. I cried out to you, and you heard me.
... you brought me safely to Ohio, and amazed all the doctors, nurses, and myself with the surgery, and how quickly you recovered me?
... you gave wisdom to the one nurse on my team to start me on flu medication even when all the other doctors said that it wasn't the flu?
... it was the flu and you had already smoothed my pathway to recovery by starting me early on the meds?
... you filled my lungs and let me sing praises to your sweet name like never before? That was so awesome!
... I was scared to be knocked out, and called your name right before the drugs hit me and just as you promised in the Psalms, held my high?
... you surrounded me with nurses who were believers?
... you gave me praise music to recover to?
... I was upset and stubborn, not wanting to get my port, and scared of it. And you reminded me who I am? you made me remember that "you make me wanna be brave"?
... when I sinned against you and you forgave me?
... you sat with me in my bad mood?
... you let me cry to you?
... I didn't want to talk, so you sat with me quietly?
... you reminded me that you're going to make me run without growing wearing, and walk without fainting.. literally. (Isaiah 40:31)
... I was having a terribleeee day at work, and you played my favorite song on the CD player?
... you died for me even when I didn't love you?
Thank You, Saviour!
I have a God who cares about every little (and big!) detail and takes care of them because God is love <3
Sunday Night: The eclipse
So... I'm only going to share one story in this post because I want to get it out before I forget but I'm really tired and lazy today lol. Anyway, Sunday my mom and I were planning on going to my sister's house. I was going to skip church and go, and my mom was going to go to church and meet me there. However, schedules got busy and my mom decided to just miss church and go in the same car with me. We went, and thank you God, had SUCH a great day! I haven't been feeling great, but Sunday I barely coughed while I was there! AND we went in the pool - which by the way was 91 degrees! AND how it fills my heart to hear little Juju crack up and say "AMPTIE EM! how do you do that?!" (i was floating on my back and apparently that's just the funniest thing!) Anyway, after a wonderful day, it was time to go. My mom and I hopped in my car and left.. but didn't get far. God's grace, on the other hand, extended far beyond my belief.
As I'm on the parkway right before the bridge I was merging into the second lane. (Like, I was in the 3rd lane on the right, and wanted to get to the second lane that's close to the left.) As I'm attempting to make my move, I feel my car die. You know that feeling when your car just loses power? Yep. I look at my speed and altho my foots all the way down trying to accelerate, I was losing speed. This all happened so quickly. But I can at least now say that I am a true Gorsky - quick Gorsky trivia: when something BAD is happening, my mom and dad's voices and attitudes get OVERLY calm lol -- but back to the story -- As soon as I realized what was happening I said "Mom, my car died" and she said "WHAT!" And I said "I have no gas" meaning I couldn't accelerate. She said "Get to the left shoulder!!" which is what I was trying to do - but before she even finished the sentence, my power steering died too. Now I know it is possible to drive without power steering -- but considering I have trouble opening doors and jars, for me to power steer would REALLY be the strength of Jesus! (No, that didn't happen. lol) I couldn't control the car anymore, and we were still at 50mph, with other cars whizzzinggg on both sides of us a lot faster than that. Some person who I could have words for, but choose not to lol decided to speed up right when I was trying to get across the left lane to the left shoulder and we almost hit him... ALMOST. We made it the left shoulder, and called the police. I wasn't scared. I wasn't frustrated. I wasn't upset in the least. God's peace.
My mom called the police and they said they'd send a tow - and JUST FYI in case you ever break down on the parkway -- it's a restricted driving area -- which means GEICO, or whatver insurance you have can't send out their guys to get you -- the state is contracted with specific towing companies to come get you and insurances will reimburse up to the closest dealership of your car -- but anyway -- they said the tow would be there in 30 minutes. Not even 5 minutes after that, a state officer pulls up on my side from prkway south, and asks if we broke down. I said yes, and he said I'll swing around that side. So he does, asks what happens and we told him everything, including the tow was coming in 30. He says let me just check on that for ya. He goes back to his car, comes back and says yea, the tows on its way. Before he even gets back to his car -- the tow truck was there! We found out the miles the insurance would reimburse for was 5 miles. It was 6.1 miles to our house. So close and yet so far.. and SO expensive! But we has such a nice tow guy, he called his boss and they brought us to our house without the additional cost!
There is SOOO much to be thankful for. And all I can keep thinking is .."I am unaware of the afflictions eclipsed by mercy". The Bible makes it clear that there is ACTUAL warfare going on. In Daniel an angel speaks of actual warfare with spirits. Now I know I've probably read and watched one too many spiritual warfare fictions, but have any of you read "This Present Darkness" by Frank Peretti? (If you haven't.. I SERIOUSLY reccommend it! That's actually the book that got me into reading!) Anyway, not to give it away but at one point in the book, theres a woman who is the enemie's (the Devil) target, and she's driving. And there are angels fighting spirits, and other angels surrounding the car, guiding the car, and protecting her. And that's what came to my mind -- I had no control over that car, and if it had been angled slightly a different way, we would have hit the car in the left lane.
There are SO many possibilities of what COULD have happened, but there's only ONE answer of what DID happen - my afflictions were eclipsed by mercy. -- I was shielded.
BAHHH and that is so like Jesus to be sweet and gentle to us, and strong and protective for us.
I was and am protected because God is love.
As I'm on the parkway right before the bridge I was merging into the second lane. (Like, I was in the 3rd lane on the right, and wanted to get to the second lane that's close to the left.) As I'm attempting to make my move, I feel my car die. You know that feeling when your car just loses power? Yep. I look at my speed and altho my foots all the way down trying to accelerate, I was losing speed. This all happened so quickly. But I can at least now say that I am a true Gorsky - quick Gorsky trivia: when something BAD is happening, my mom and dad's voices and attitudes get OVERLY calm lol -- but back to the story -- As soon as I realized what was happening I said "Mom, my car died" and she said "WHAT!" And I said "I have no gas" meaning I couldn't accelerate. She said "Get to the left shoulder!!" which is what I was trying to do - but before she even finished the sentence, my power steering died too. Now I know it is possible to drive without power steering -- but considering I have trouble opening doors and jars, for me to power steer would REALLY be the strength of Jesus! (No, that didn't happen. lol) I couldn't control the car anymore, and we were still at 50mph, with other cars whizzzinggg on both sides of us a lot faster than that. Some person who I could have words for, but choose not to lol decided to speed up right when I was trying to get across the left lane to the left shoulder and we almost hit him... ALMOST. We made it the left shoulder, and called the police. I wasn't scared. I wasn't frustrated. I wasn't upset in the least. God's peace.
My mom called the police and they said they'd send a tow - and JUST FYI in case you ever break down on the parkway -- it's a restricted driving area -- which means GEICO, or whatver insurance you have can't send out their guys to get you -- the state is contracted with specific towing companies to come get you and insurances will reimburse up to the closest dealership of your car -- but anyway -- they said the tow would be there in 30 minutes. Not even 5 minutes after that, a state officer pulls up on my side from prkway south, and asks if we broke down. I said yes, and he said I'll swing around that side. So he does, asks what happens and we told him everything, including the tow was coming in 30. He says let me just check on that for ya. He goes back to his car, comes back and says yea, the tows on its way. Before he even gets back to his car -- the tow truck was there! We found out the miles the insurance would reimburse for was 5 miles. It was 6.1 miles to our house. So close and yet so far.. and SO expensive! But we has such a nice tow guy, he called his boss and they brought us to our house without the additional cost!
There is SOOO much to be thankful for. And all I can keep thinking is .."I am unaware of the afflictions eclipsed by mercy". The Bible makes it clear that there is ACTUAL warfare going on. In Daniel an angel speaks of actual warfare with spirits. Now I know I've probably read and watched one too many spiritual warfare fictions, but have any of you read "This Present Darkness" by Frank Peretti? (If you haven't.. I SERIOUSLY reccommend it! That's actually the book that got me into reading!) Anyway, not to give it away but at one point in the book, theres a woman who is the enemie's (the Devil) target, and she's driving. And there are angels fighting spirits, and other angels surrounding the car, guiding the car, and protecting her. And that's what came to my mind -- I had no control over that car, and if it had been angled slightly a different way, we would have hit the car in the left lane.
There are SO many possibilities of what COULD have happened, but there's only ONE answer of what DID happen - my afflictions were eclipsed by mercy. -- I was shielded.
BAHHH and that is so like Jesus to be sweet and gentle to us, and strong and protective for us.
I was and am protected because God is love.
Wednesday, May 9, 2012
it was a good day!
Hello again! Ok so update time! I wasn't breathing well Sunday morning -- but God helped me get up, get ready and be able to breathe enough for my parents to take me down to Bradley Beach to meet my friend Celeste and our team for the Great Strides Cystic Fibrosis Walk-a-thon! I went on oxygen and in my transfer chair, and we got there for like the last half hour of it, which was totally a God gift because by the way I was breathing.. or not breathing haha it was unlikely I was going to make the event at all and all morning I worked really hard, and prayed even harder "God, just please let us get there before it's over" and he did! ANDDDD.. Our team raised over $2000 for CF and I only started fundraising about a week or so before the walk, and my sponsors donated $1,195!! THANK YOU THANK YOU THANK YOU THANK YOU -- I really can't say THANK YOU enough to everyone who donated and Celeste and the team!!!!
After the walk, I was feeling pretty good -- meaning I wasn't a zombie or in a bad mood lol we came home, and Nicole and June came over but I guess the car ride took it out of me because when we got home, I was absolutely beat, and started coughing and breathing harder again. Monday morn I woke up early.. 5am! I woke up because I wasn't feeling good at all. Breathing was really hard, coughing A LOT, headache, etc.. my ox was low, and my side really hurt (I frequently pull muscles in my sides from the coughing, but usually it's bearable) soo I took a pain killer and waited for it to kick in so I could start my treatments and therapy. It kicked in! I started my treatments in bed! I'm FREEZING! lol my temperature decided to spike to 103.6! At that point, I was able to get up and do therapy after my treatments and was already breathing easier, but still terribly. I'll speed this up a little cos this is the boring stuff -- texted my doc, made admission plans, got ready, got admitted.
Last August the hospital was a nightmare. I understand I'm a lot to take in haha and I'm not the only patient and all that jazz but when I come to the hospital, it means I'm not healthy enough to fend for myself or else I'd be home, so when I come to the hosp, it's important that they do the medications and have common sense about health because they are taking care of me. Last time I had to fend for myself, while fighting for meds, while "resting" to get better lol no bueno. Anyway, I don't mean this as a bash session on my last visit -- but if you don't have a concept of the storm, the calm is downplayed. So this time, my mom was prepared! (thank God for her!) She packed all my meds, extra things I ended up needing and didn't think about, and helped me pack all while she still packed for herself, brought all my records and extra paper/pens to write down info for this time -- astonishing. Oh yea, and she put my IV in before we left. Thank you, Jesus, for my mom!
We prayed and prayed, as did you guys (thank you!!!), and we got here and God just totally set me up from the start. My nurse saw that I already had my IV in, and wasn't comfortable with that -- she explained to us why, and her knowledge about IVs and their care became very evident; comforting me that I don't have to stay up, be anxious or watch as she hooks up medicines to my IV. THANK YOU GOD! I really can not explain this feeling to you at all lol I felt so relaxed as God reminded that He prepares a way - "Do not be afraid or discouraged, for the LORD will personally go ahead of you.." Deuteronomy 31:8 -- how easily I get distracted and forget the sweet promises of God -- and how focused He is on sweetly reminding me of them. Not only did he equip me with comfort that my nurse knew what she was doing, he gave her the idea to hook up a constant IV so that once the medicine finishes, it will automatically go to the saline bag -- which means my IV never gets unhooked -- which eliminates the anxiety and risk of my other nurses doing it improperly! I have never slept this much in a hospital before!!! Thank you, Jesus! How you have already smoothed a path for me!!
And just like God, the blessings don't stop there! "From his abundance we have all received one gracious blessing after another." John 1:16 .. Kept having good nurses, blood work went smoothly, rested a lot!! Today was my best day yet! I woke up so nicely and so optimistic, but after therapy, I felt pretty crummy. I was exhausted, my body was so sore, and my lungs hurt and felt tired too. The pain in my side only added to everything else, and I had to get up to have my bed changed (which my mom did), and get washed up (which my mom helped me do), all while I was coughing and breathing hard. They gave me a percoset (spelling?) and man oh man... those bad boys are good! I felt better in less than an hour, and not only could cough better and do better therapy because the pain was gone, but also .. WALKED AROUND!! Like a legit walk -- we could up my oxygen to a portable tank, took my transfer chair for me to push so that I had something to hold on to and incase I got too tired to walk back, and we walked the halls! (for anyone thinking "OMGSH GERMS!" I had a mask on, don't worry ;) ) we made two laps through the little hallways and back to my room with energy and enough breath! When I got back, I wasn't exhausted! I was breathing hard, but not out of control -- I didn't feel like I couldn't breathe and my oxygen was at 92!! I then did my second round of therapy for the day which went soooo much smoother than it has been! Thank you God!! It was so great! Ate, rested, did an echocardiogram, and then... went for another walk!! This time, unfortunately the walk didn't go so well lol I barely made it back and was coughing a lottttttt -- oxygen went down to 84 while still on 3 liters... but my mom and i are thinking it's because the hospital put fresh flowers up between our walk, and we sat by one of the arrangements and that's when I started flaring up -- allergies! lol Anyway, it was still great and I'm generally feeling better and optimistic about getting better!
As for my incredible mother -- she got a night off! My dad came tonight and is sleeping over to keep an eye on me. The night got too late and we didn't get to go for a pre-bed walk, but that's ok -- I have tomorrow!
Speaking of tomorrow.... I MIGHT GO HOME !! My doc came in and said whatever happened it seems that the medicine regimen they put me on seems to be working and she'll check on me tomorrow with a good possibility I could go home! AYAYA Thanks for your prayers and love and encouragement!!
I am SO happy because God is love.
After the walk, I was feeling pretty good -- meaning I wasn't a zombie or in a bad mood lol we came home, and Nicole and June came over but I guess the car ride took it out of me because when we got home, I was absolutely beat, and started coughing and breathing harder again. Monday morn I woke up early.. 5am! I woke up because I wasn't feeling good at all. Breathing was really hard, coughing A LOT, headache, etc.. my ox was low, and my side really hurt (I frequently pull muscles in my sides from the coughing, but usually it's bearable) soo I took a pain killer and waited for it to kick in so I could start my treatments and therapy. It kicked in! I started my treatments in bed! I'm FREEZING! lol my temperature decided to spike to 103.6! At that point, I was able to get up and do therapy after my treatments and was already breathing easier, but still terribly. I'll speed this up a little cos this is the boring stuff -- texted my doc, made admission plans, got ready, got admitted.
Last August the hospital was a nightmare. I understand I'm a lot to take in haha and I'm not the only patient and all that jazz but when I come to the hospital, it means I'm not healthy enough to fend for myself or else I'd be home, so when I come to the hosp, it's important that they do the medications and have common sense about health because they are taking care of me. Last time I had to fend for myself, while fighting for meds, while "resting" to get better lol no bueno. Anyway, I don't mean this as a bash session on my last visit -- but if you don't have a concept of the storm, the calm is downplayed. So this time, my mom was prepared! (thank God for her!) She packed all my meds, extra things I ended up needing and didn't think about, and helped me pack all while she still packed for herself, brought all my records and extra paper/pens to write down info for this time -- astonishing. Oh yea, and she put my IV in before we left. Thank you, Jesus, for my mom!
We prayed and prayed, as did you guys (thank you!!!), and we got here and God just totally set me up from the start. My nurse saw that I already had my IV in, and wasn't comfortable with that -- she explained to us why, and her knowledge about IVs and their care became very evident; comforting me that I don't have to stay up, be anxious or watch as she hooks up medicines to my IV. THANK YOU GOD! I really can not explain this feeling to you at all lol I felt so relaxed as God reminded that He prepares a way - "Do not be afraid or discouraged, for the LORD will personally go ahead of you.." Deuteronomy 31:8 -- how easily I get distracted and forget the sweet promises of God -- and how focused He is on sweetly reminding me of them. Not only did he equip me with comfort that my nurse knew what she was doing, he gave her the idea to hook up a constant IV so that once the medicine finishes, it will automatically go to the saline bag -- which means my IV never gets unhooked -- which eliminates the anxiety and risk of my other nurses doing it improperly! I have never slept this much in a hospital before!!! Thank you, Jesus! How you have already smoothed a path for me!!
And just like God, the blessings don't stop there! "From his abundance we have all received one gracious blessing after another." John 1:16 .. Kept having good nurses, blood work went smoothly, rested a lot!! Today was my best day yet! I woke up so nicely and so optimistic, but after therapy, I felt pretty crummy. I was exhausted, my body was so sore, and my lungs hurt and felt tired too. The pain in my side only added to everything else, and I had to get up to have my bed changed (which my mom did), and get washed up (which my mom helped me do), all while I was coughing and breathing hard. They gave me a percoset (spelling?) and man oh man... those bad boys are good! I felt better in less than an hour, and not only could cough better and do better therapy because the pain was gone, but also .. WALKED AROUND!! Like a legit walk -- we could up my oxygen to a portable tank, took my transfer chair for me to push so that I had something to hold on to and incase I got too tired to walk back, and we walked the halls! (for anyone thinking "OMGSH GERMS!" I had a mask on, don't worry ;) ) we made two laps through the little hallways and back to my room with energy and enough breath! When I got back, I wasn't exhausted! I was breathing hard, but not out of control -- I didn't feel like I couldn't breathe and my oxygen was at 92!! I then did my second round of therapy for the day which went soooo much smoother than it has been! Thank you God!! It was so great! Ate, rested, did an echocardiogram, and then... went for another walk!! This time, unfortunately the walk didn't go so well lol I barely made it back and was coughing a lottttttt -- oxygen went down to 84 while still on 3 liters... but my mom and i are thinking it's because the hospital put fresh flowers up between our walk, and we sat by one of the arrangements and that's when I started flaring up -- allergies! lol Anyway, it was still great and I'm generally feeling better and optimistic about getting better!
As for my incredible mother -- she got a night off! My dad came tonight and is sleeping over to keep an eye on me. The night got too late and we didn't get to go for a pre-bed walk, but that's ok -- I have tomorrow!
Speaking of tomorrow.... I MIGHT GO HOME !! My doc came in and said whatever happened it seems that the medicine regimen they put me on seems to be working and she'll check on me tomorrow with a good possibility I could go home! AYAYA Thanks for your prayers and love and encouragement!!
I am SO happy because God is love.
Just this morning
Good morning - this is Emily Gorsky reporting from the hospital with local weather and updates. This morning's report is brought to you by God, The Almighty Creator.
So just incase that wasn't as amusing for you as it was for me -- keep in mind i'm on oxygen and bear with me :P haha i actually did want to say something about weather and updates though. It is SO foggy! I woke up this morning thinking I was confused because my window was just white -- I thought I wasn't seeing clearly but I was -- it was so foggy it blurred everything out! Crazy!
But anyway, I am feeling better this morning! I will try to type a full update now about the past few days but I don't have time to right now but I'll try to type it after my therapy depending on how tired I am -- whenever it is, it'll get done because I have to tell you how great Jesus is! Psalm 145:6 "Your awe-inspiring deeds will be on every tongue; I will proclaim your greatness."
So here's the basics -- I'm down to 3 liters of oxygen -- was able to go down to 2 for a little while last night but then brought back up to 3 for when I went to sleep and because it wasn't steadily over 91 at 2 liters. I did NOT wake up struggling to breathe today -- sooo nice to wake up nicely! AND I'm in a really good mood ! Just fyi - me waking up in a good mood is surprising for when I'm feeling my best! hahah so I know my mood will fluctuate because the therapies reallyyyy tire me out and we're doing them 3 times a day but I woke up a little earlier than I had to today, and I just layed in bed and talked with God -- and it was soo nice. So there's no doubt in my mind that he's helping me focus on him and maintain the right attitude/mood. That's it so far! I'll write more later hopefully! Thank you for the prayers! Keep 'em coming ! -- and don't forget to pray for my mom -- she stays with me all day AND night -- sleeping on either a cot or a really uncomfy chair -- and she does the majority of my therapy which is just as taxing on her! Thanks everyone!
I woke up to a much needed, much refreshing, early morning chat with my God because God is love.
So just incase that wasn't as amusing for you as it was for me -- keep in mind i'm on oxygen and bear with me :P haha i actually did want to say something about weather and updates though. It is SO foggy! I woke up this morning thinking I was confused because my window was just white -- I thought I wasn't seeing clearly but I was -- it was so foggy it blurred everything out! Crazy!
But anyway, I am feeling better this morning! I will try to type a full update now about the past few days but I don't have time to right now but I'll try to type it after my therapy depending on how tired I am -- whenever it is, it'll get done because I have to tell you how great Jesus is! Psalm 145:6 "Your awe-inspiring deeds will be on every tongue; I will proclaim your greatness."
So here's the basics -- I'm down to 3 liters of oxygen -- was able to go down to 2 for a little while last night but then brought back up to 3 for when I went to sleep and because it wasn't steadily over 91 at 2 liters. I did NOT wake up struggling to breathe today -- sooo nice to wake up nicely! AND I'm in a really good mood ! Just fyi - me waking up in a good mood is surprising for when I'm feeling my best! hahah so I know my mood will fluctuate because the therapies reallyyyy tire me out and we're doing them 3 times a day but I woke up a little earlier than I had to today, and I just layed in bed and talked with God -- and it was soo nice. So there's no doubt in my mind that he's helping me focus on him and maintain the right attitude/mood. That's it so far! I'll write more later hopefully! Thank you for the prayers! Keep 'em coming ! -- and don't forget to pray for my mom -- she stays with me all day AND night -- sleeping on either a cot or a really uncomfy chair -- and she does the majority of my therapy which is just as taxing on her! Thanks everyone!
I woke up to a much needed, much refreshing, early morning chat with my God because God is love.
Friday, May 4, 2012
analyze this. wait, actually don't.
hello strangers! i havent written on here in forev -- that seems to be the opening of all my posts .. woops! anyway -- i really don't have any God revelation in mind to type about but knowing Jesus, He will use this anyway for me, and hopefully for some of you as well.
This is how I'm feeling today -- a cluster of emotions all storming at once and fighting for my attention. I am SOOOO happy because it is Julianna's 2nd birthday! Brace yourself for some hardcore cliche -- she is such a blessing! I LOVE that little girl!! I can't describe how I feel when she calls me "Ampie Em" or sometimes, she's too cool for the "Em" and just says "Hey Ampie!" -- ahh I loove it! HAPPY BIRTHDAY LITTLE JUJ!!! <33
So obviously happiness is one of the emotions stirring in me. Then there's feelings that are pathetic. I have missed work since Tuesday because I either got sick or got bombarded with allergies. I lost my voice, hence I can't make calls, hence I can't work. So I've been trying to get better obviously, and praise God, yesterday I really felt better! No more headache or throat tickling coughing, or just that over all dreadful feeling. But.. I still didn't have enough of a voice so my supervisor told me to stay home. Last night, I was talking more, and had more of a voice and was confident that I could work today. I called my supervisor and he said I sounded good enough and to come on in! But... I don't feel that good. Therapy was harder than usual, and I was coughing more than usual. I check my oxygen -- 86 ! (FYI, that's bad.) So I call him back for the umpteenth time, and just give him a heads up that I will be wearing oxygen at work. I finally get out the door and get to work... late. I haven't been late for the 3 weeks I've been there. I haven't even been on time -- I like getting there EARLY! lol but anyway.. bla bla bla .. I got up the stairs and couldn't breathe good.. ppl were asking if I was ok but I couldnt answer because I had to try to catch my breath. After I did, I said I was fine, although I doubt anyone believed me .. I wouldnt believe me either haha. I was at work for like 20 minutes and told my supervisor I couldn't do it. I didn't have enough breath to get through the scripts, and when I did get through them, my voice was cutting in and out. I don't want to lose sales for the company because of my voice. Thank God for my supervisor -- he was so kind and understanding - telling me it's not my fault and to rest up and feel better. SO nice! So I'm on my way home, and it's like a raging battle in my mind for my thoughts. I'm thinking -- well you know you're getting closer to transplant, and then I'd start to cry, and then the Bible verses that say not to worry about tomorow, and to take every thought captive and make it obedient to Christ, come into my mind. And then I start analyzing out of control -- well it's ok to be upset, but I have nothing to worry about because I have Jesus, but I'm sad, but I'm glad I have such an awesome Saviour, but this but that.. and so on and so forth. BLAAA!
Transplant is a touchy topic for me and if I'm not careful, the devil can really use it to his advantage. I do not want a transplant. I understand that if the time comes when I really need one, I'll want one. And I am SOO thankful and comforted that I have a backup like transplant. BUT the more I learn about transplant, the more I don't want one. Certain things -- silly things -- come to mind -- like I can't be kissed by puppies and they can't sleep in my bed. I know, I know, stupid. Obviously I'd choose to live rather than cuddling with my pup, but still. And after surgery my ribs are wired back together... the wires stay in there. I can't take it. I can't go into any more than that cause even just those are starting to make me anxious, and that's the opposite of what I'm striving for. Anyway, I've started having nightmares about transplant. I've had one like the past three nights. The gist of them is that transplant is approaching before I'm ready.
I think that's really why I'm upset. It's disappointing that I've only been off IVs for a week and I only got to enjoy a few days. I am always so hopeful after IVs -- feeling good, wanting to start exercising, doing things in my day instead of just sleeping -- it' soo great! But I only got I think like 3 days from 2 weeks of IVs.. and now I'm on oxygen -- what is going on here? It's funny how the bad sticks out amongst so much goodness though. I could sit here and complain, which I have been doing this whole post, about this or that... and have I once mentioned how awesome God is in comforting me? I'm alive, and more importantly, HE IS ALIVE. I just keep getting reminded that God's in control -- Dear Emily, don't you remember when you were told you had a blood clot in your heart? I was there for that. I was there for the anxiety, the crying, the panic. I was there for the tough decisions and every repercussion of those decisions. I was right there in the chaos. And don't you remember? Just as I set a boundary for the ocean on the sand, I set a boundary for that. I wouldn't allow that to go any further than what I willed for it, and I have complete command over every circumstance, every health scare, and every detail of life. I am with you still. Don't forget how I've proved myself before. Remember, my daughter, that I will always have complete command. Storms calm, demons flee and breath is given with just my name. I am not leaving you to deal with this, either. But please remember to keep your focus on me. The chaos is so much more when you're eyes are focused on the storm, instead of the storm calmer. It may seem like a lot, but I have equipped you with more. Don't worry. I am your comforter. I delight in loving you, and helping you. -- ahh thank you Jesus <333333
Well... I guess that's it for the blog because God just totally spoke to my heart <3 PRAISE JESUS <3
I have my own personal comforter because God is love.
This is how I'm feeling today -- a cluster of emotions all storming at once and fighting for my attention. I am SOOOO happy because it is Julianna's 2nd birthday! Brace yourself for some hardcore cliche -- she is such a blessing! I LOVE that little girl!! I can't describe how I feel when she calls me "Ampie Em" or sometimes, she's too cool for the "Em" and just says "Hey Ampie!" -- ahh I loove it! HAPPY BIRTHDAY LITTLE JUJ!!! <33
So obviously happiness is one of the emotions stirring in me. Then there's feelings that are pathetic. I have missed work since Tuesday because I either got sick or got bombarded with allergies. I lost my voice, hence I can't make calls, hence I can't work. So I've been trying to get better obviously, and praise God, yesterday I really felt better! No more headache or throat tickling coughing, or just that over all dreadful feeling. But.. I still didn't have enough of a voice so my supervisor told me to stay home. Last night, I was talking more, and had more of a voice and was confident that I could work today. I called my supervisor and he said I sounded good enough and to come on in! But... I don't feel that good. Therapy was harder than usual, and I was coughing more than usual. I check my oxygen -- 86 ! (FYI, that's bad.) So I call him back for the umpteenth time, and just give him a heads up that I will be wearing oxygen at work. I finally get out the door and get to work... late. I haven't been late for the 3 weeks I've been there. I haven't even been on time -- I like getting there EARLY! lol but anyway.. bla bla bla .. I got up the stairs and couldn't breathe good.. ppl were asking if I was ok but I couldnt answer because I had to try to catch my breath. After I did, I said I was fine, although I doubt anyone believed me .. I wouldnt believe me either haha. I was at work for like 20 minutes and told my supervisor I couldn't do it. I didn't have enough breath to get through the scripts, and when I did get through them, my voice was cutting in and out. I don't want to lose sales for the company because of my voice. Thank God for my supervisor -- he was so kind and understanding - telling me it's not my fault and to rest up and feel better. SO nice! So I'm on my way home, and it's like a raging battle in my mind for my thoughts. I'm thinking -- well you know you're getting closer to transplant, and then I'd start to cry, and then the Bible verses that say not to worry about tomorow, and to take every thought captive and make it obedient to Christ, come into my mind. And then I start analyzing out of control -- well it's ok to be upset, but I have nothing to worry about because I have Jesus, but I'm sad, but I'm glad I have such an awesome Saviour, but this but that.. and so on and so forth. BLAAA!
Transplant is a touchy topic for me and if I'm not careful, the devil can really use it to his advantage. I do not want a transplant. I understand that if the time comes when I really need one, I'll want one. And I am SOO thankful and comforted that I have a backup like transplant. BUT the more I learn about transplant, the more I don't want one. Certain things -- silly things -- come to mind -- like I can't be kissed by puppies and they can't sleep in my bed. I know, I know, stupid. Obviously I'd choose to live rather than cuddling with my pup, but still. And after surgery my ribs are wired back together... the wires stay in there. I can't take it. I can't go into any more than that cause even just those are starting to make me anxious, and that's the opposite of what I'm striving for. Anyway, I've started having nightmares about transplant. I've had one like the past three nights. The gist of them is that transplant is approaching before I'm ready.
I think that's really why I'm upset. It's disappointing that I've only been off IVs for a week and I only got to enjoy a few days. I am always so hopeful after IVs -- feeling good, wanting to start exercising, doing things in my day instead of just sleeping -- it' soo great! But I only got I think like 3 days from 2 weeks of IVs.. and now I'm on oxygen -- what is going on here? It's funny how the bad sticks out amongst so much goodness though. I could sit here and complain, which I have been doing this whole post, about this or that... and have I once mentioned how awesome God is in comforting me? I'm alive, and more importantly, HE IS ALIVE. I just keep getting reminded that God's in control -- Dear Emily, don't you remember when you were told you had a blood clot in your heart? I was there for that. I was there for the anxiety, the crying, the panic. I was there for the tough decisions and every repercussion of those decisions. I was right there in the chaos. And don't you remember? Just as I set a boundary for the ocean on the sand, I set a boundary for that. I wouldn't allow that to go any further than what I willed for it, and I have complete command over every circumstance, every health scare, and every detail of life. I am with you still. Don't forget how I've proved myself before. Remember, my daughter, that I will always have complete command. Storms calm, demons flee and breath is given with just my name. I am not leaving you to deal with this, either. But please remember to keep your focus on me. The chaos is so much more when you're eyes are focused on the storm, instead of the storm calmer. It may seem like a lot, but I have equipped you with more. Don't worry. I am your comforter. I delight in loving you, and helping you. -- ahh thank you Jesus <333333
Well... I guess that's it for the blog because God just totally spoke to my heart <3 PRAISE JESUS <3
I have my own personal comforter because God is love.
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